Hello Friends! Happy Weekend! I hope you all had a fantastic week!
I have had a bunch of people asking about how my health is doing so I thought I'd just make a quick post to give you all an update.
The sarcoidosis is in my lungs and lymph nodes.I have pain inside my upper body almost every day of the week. Usually it starts around half way through the day and increases as the day goes on. The more active I am the more pain I end up in. Two-three advil or a cannabis cookie will generally take away the pain; on a really bad day I may need both the advil and the cookies.
In addition to the pain, I am dealing with some breathing problems, nothing serious at the moment, but I have been noticing it getting worse over the last month. I'm going to need some special steroid ( Prednisone ) drugs in about a month to get it back under control. (It's just something that is probably going to happen for the rest of my life. The steroids help for a few months than it flares up again)
I am also dealing with crazy temperature changes; intense hot flashes and freezing cold, plus sleep issues and severe exhaustion (It don't matter if I sleep 2 hours or 10 hours, I'm always tired). The exhaustion is probably being caused by lack of oxygen.
I find I have 2-4 hours of energy daily. 2-4 hours that I can get things done every day, and then I'm done for the day. Simply out of energy.
Some of my problems may be coming from a thyroid issue. Thyroid problems are extremely common with sarcoidosis. I am going on Tuesday to get some tests done for it. The hot flashes, extreme cold, and exhaustion could be caused by an overactive or under active thyroid.
I am also dealing with some serious anxiety and depression problems, which is extremely unusual for me. I have never had a mental health issue in my life :(. The Doctor believes that is ether coming from the thyroid issues or its PTSD from living in Coe Hill (or both).
Unfortunately all my health issues, mental and physical, can be traced back to Coe Hill. The specialist believes I have had sarcoidosis for several years, but it never got really bad and was always healable, until Coe Hill. Between the stress, the mold (in the house and in the forest), the wood smoke and the cold (the house ended up being a three season home, not a four season like I was told, so come winter with no heat source but one poorly set up woodstove, I froze), the sarcoidosis got pushed into overdrive and is now really pissed off :(
Stress and sarcoidosis don't meld well, and the stress in Coe Hill was higher than I have ever dealt with in my life. The people who owned the property yelled at me and belittled me constantly for the first 4-5 months (until I blocked them). It got to the point that I was actually fearful to even go on Facebook and every time I saw that I had a "Private Message" I felt sick to my stomach. Even today, I still get ill feeling when I see I have a Facebook private message, I think someone is going to yell at me.
To add to my stress, the solar panels didn't make enough energy for me to work. (I actually knew that was going to happen (that there wouldn't be enough energy come winter) and told the property owners that I could not move in with the solar panels the way they were. They LIED to me and promised more would be put in ... of course it never happened.) The piece of crap generator that came with the house was just that a piece of crap and kept breaking down (again, I got blamed for that too cause somehow I wasn't "using it properly"). Everything is so very stressful.
I couldn't work online, was going broke (went broke), kept getting sicker and sicker, my stress levels kept rising, I lived in constant fear. I was terrified for my family.
When I finally got out of Coe Hill, I was so messed up that I would start shaking in terror at the slightest thing. A big noise would send me into a panic attack. The slightest mean word would bring me to tears. I barely slept. I couldn't concentrate and found doing my online work very difficult. Even today I still have 3-4 panic attacks a day and am lucky to sleep 3-4 hours a night.
Hence why the Doctor thinks the anxiety attacks and depression I have been struggling with may be PTSD.
Who would of thought that so much damage could be done in only 8 months.
I'm ok and will be ok. I'm getting better every day and will eventually get back to myself. I'm friggin' tough as hell! Of course I will get through this! I thank you for all your caring and kind words. Life can be tough. We all need a little help sometimes.
Hugs and love!
Trish